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Researchers & Clinicians


NEW - Million Dollar Bike Ride Pilot Grant Program

The ODC MDBR Pilot Grant Program provides a one‐year grant to support research related to a rare disease represented in the 2023 Million Dollar Bike Ride. Number of awards and dollar amounts vary per disease based on fundraising totals by each disease team.

This RFA is open globally. International applicants are invited to apply. All individuals holding a faculty‐level appointment at an academic institution or a senior scientific position at a non-profit institution or foundation are eligible to respond to this RFA. Prior MDBR award recipients must have current and updated project reporting to be eligible for selection.

See complete details:

Letter of Interest Instructions:

One-page LOI is due no later than Friday, September 15, 2023 by 8pm (EST).
Full Application Instructions and Review Procedure
NOTE: Full Application is by invitation only after review of Pre-Application

Proposal Due Date:

Monday, October 16, 2023 no later than 8pm (EST)
Full application documents are to be uploaded on our website, by invitation only.

Description for CLA Research:
Complex Lymphatic Anomalies (CLA): We are soliciting research applications for a $60,679 award focused on Complex Lymphatic Anomalies (CLAs), including Gorham-Stout disease (GSD), generalized lymphatic anomaly (GLA), kaposiform lymphangiomatosis (KLA) and central conducting lymphatic anomaly (CCLA). Priority will be given to laboratory or clinical research proposals with a strong likelihood of future federal funding. Areas of interest include, but are not limited to, genomic and/or proteomic analyses, biomarker identification/validation, cell line creation and characterization, and imaging. This award is made possible by Team LGDA (Lymphangiomatosis & Gorham’s Disease Alliance), Team LGD Alliance Europe and Team LMI (Lymphatic Malformation Institute). 

Our Impact on CLA Research

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  • Funds Raised