No two stories or experiences are the same. Share your story or quote with our community to inspire hope, build connections, and educate the public on the impact of about this rare disease.
Stories can be written or it can be a video. Here is an example of a story outline:
Answer one or all the questions in our form to create a quote.
You may upload your story, video, photos, quote, and the LGDA Image Consent and Release Form. Items can also be emailed to email@example.com.
2023 Scientific Conference
Get caught up! Watch the presentations from the 2023 Scientific Conference.
Just diagnosed with a CLA. Check out our Patient Guidebook in 9 languages.
LGDA has several support groups on Facebook to connect with other patients and families.