No two stories or experiences are the same. Share your story or quote with our community to inspire hope, build connections, and educate the public on the impact of about this rare disease.
Stories can be written or it can be a video. Here is an example of a story outline:
Answer one or all the questions in our form to create a quote.
You may upload your story, video, photos, quote, and the LGDA Image Consent and Release Form. Items can also be emailed to email@example.com.
Get caught up! Our 2022 CLA Webinar Series are on YouTube.
Just diagnosed with a CLA.
Check out our introductory videos to learn more.
LGDA has several support groups on Facebook to connect with other patients and families.