Real progress for a condition that’s been overlooked for too long.
Families are finding answers faster. Patients are being heard. Research is moving forward.
What started with one person searching for clarity has become a growing movement—connecting patients, families, clinicians, and researchers to change what’s possible for isolated lymphatic malformations and complex lymphatic anomalies.
The impact so far:
- 5M+ people reached through education, stories, and community engagement
- Over 1M+ raised to fund 25 research projects advancing understanding and care
- Plain-language patient guides reaching people in 51 different countries
- Direct communication with patients and families in 20 countries
- Valuable research data through the international lymphatic malformation patient registry
- A growing global community of families and patients
- Sharing the latest research breakthrough through patient friendly blog posts
Transparency and Accountability
Progress should be visible—and so should how we get there.
We are committed to operating with clarity, responsibility, and trust. That includes sharing how resources are used to support patients, families, and research. If you want a deeper look at our work and financials, you can explore our full reports below.
Annual Reports
A closer look at what we've accomplished each year, the progress we're driving, and where we're headed next.
IRS Form 990s
Detailed financial reporting that reflects how funds are used to support our mission.
Strategic Plan
A clear path forward.
Isolated lymphatic malformations and complex lymphatic anomalies have been overlooked for too long—leaving patients and families to navigate confusion, limited care access, and slow progress.
We’re changing that.
Our focus is simple: bring clarity, connection, and momentum to a condition that needs all three.
How We Work
We connect the people who need to be working together:
Patients. Families. Clinicians. Researchers.
By aligning these voices, we help turn fragmented effort into real progress.
What We're Solving
People aren’t just managing a condition. They’re navigating:
- Unclear, inconsistent information
- Difficulty finding trusted, scientifically accurate information that is explained in a way they can actually understand
- Delays in diagnosis and access to expert care
- Limited coordination across research and treatment
- Isolation from others who understand
This is where we focus our work.
What Progress Looks Like
- Faster paths from diagnosis to care
- More informed and supported families
- Stronger collaboration across the field
- Increased participation in research
- Greater visibility for lymphatic malformations
Built on Realistic Hope
We don’t offer quick fixes.
We build steady, meaningful progress—step by step, together.
Be Part of What’s Next
Progress happens when people come together.
Whether you’re seeking answers or helping create them, there’s a place for you in what comes next.
