Newsroom : News & Events : Lymphangiomatosis & Gorham's Disease Alliance

Decoding Genetics

What is lymphatic drainage, and does it help CLA patients?

Navigating Life with Rare Diseases: Unveiling the Power Within

Lymphatic Vascular Development: Unveiling the Role of Shear Stress and S1PR1

Breaking Down Barriers in Healthcare: Legislative Developments

Advancements in Understanding and Treating KLA

CLA Diagnosis and Management: Navigating the Complex Terrain

Navigating Your Child's Online Well-being

Unveiling the Mysteries of Gorham Stout Disease

Crucial Mental Health Needs of CLA Patients

Exploring Breakthroughs in Lymphatic System Care

A Comprehensive Patient Guide to CLAs

Understanding Lymphatic Malformations & Their Impact on the Lungs

New Study Brings Hope for New Treatments

Thank you - we did it!

CLA Community Newsletter: Spring 2023

Patient Story - Amber McCall

New Grant - Alfie Milne Young Investigator Award

Rare Disease Day 2023: Empowering Community Advocacy and Innovation

byPolitico

Rare Disease Day - Celebrate with LGDA!

New Grant Opportunity - Pilot and Established Investigator Awards

Celebrate Rare Disease Day - February 28, 2023

How to help a child when a sibling’s illness has consumed the family

Pfizer RxPathways Updated

byLGDA

Help us raise $75,000 in 2022

byMichael Kelly, MD - Executive Director

Celebrating Giving Tuesday

A Visionary Leader with a Heart of Gold

byLGDA

Our Impact on the CLA Community

byLGDA

New Horizons - Mike Kelly, Executive Director

byMichael Kelly, MD

Our community impact!

Social Media Followers

2,970
Registry Participants

464
Funds Raised for Research

$900,000

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