Help Make Rare Visible

Isolated lymphatic malformations and Complex Lymphatic Malformations are rare. But the experience of navigating them—confusion, isolation, unanswered questions—is not.

This Awareness Month, we’re bringing patients, families, clinicians, and partners together to create clarity, connection, and progress.

This media kit gives you simple, ready-to-use tools to help raise awareness and support the community.

Because no one should have to navigate this alone.

How to Participate

Supporting Lymphatic Malformation Awareness Month is simple.

You can:

Share educational posts
Amplify patient voices
Direct your audience to trusted resources
Accelerate research to improve outcomes for patients and families

Every post helps someone feel seen. Every share helps someone find answers.

Social Media Posts

Use these ready-made posts or adapt them to fit your voice. Tag the LGDA and use the hashtag #LMawarenessMonth.Other hashtags to consider:

#LymphaticMalformations
#ComplexLymphaticAnomalies
#RareDiseaseAwareness
#PatientAdvocacy

Social media:

Resources

Understanding isolated lymphatic malformations and complex lymphatic anomalies can feel overwhelming—but you don’t have to navigate it alone.

We’ve created and curated resources to help individuals, families, and caregivers better understand these conditions, prepare for care, and find support.

Patient & Family Guides

Our guides are designed to provide clear, patient-friendly information to help you understand diagnosis, treatment options, and what to expect.