LGDA ensures patients with complex lymphatic anomalies (CLAs) have the comprehensive support they need from peer, medical, and scientific communities to lead longer, higher-quality lives.
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Patients and families can access resources, services, and support.
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Fundraisers raise awareness and generate crucial resources for the patient community.
Learn how to help.
The International LGDA Registry for Lymphatic Malformations is a place for patients to share detailed medical information and family history providing valuable data information for research and clinical trials.
Patients make the difference
Thank you to our patients that share the experience of living with a CLA so they can be understood like never before. The registry helps researchers worldwide unlock the mysteries of CLAs to find treatments and a cure!
The patient registry...
- allows researchers to better understand CLAs
- leads to better diagnosis and treatment of CLAs
- locates people for clinical trails or studies
At the heart of everything we do.
