Welcome to the CLA Community! Contact us anytime at support@lgdalliance.org. Learn more about our community and LGDA.
Our LGDA Support Team is available to:
- provide a listening ear
- share experiences
- connect you with a CLA expert
- support you in your fundraising efforts
- connect you with other families local to you
- Don’t feel alone – get in touch
Contact us at support@lgdalliance.org
Peer-to-Peer Program
The LGDA Peer-to-Peer Program is designed to connect individuals affected by CLAs with others who share similar experiences. Whether you are an adult patient (18+) living with a CLA or a parent of a child affected by a CLA, this program offers an opportunity to connect with someone who understands the unique challenges of navigating this rare condition.
By filling out our Peer-to-Peer Matching Form you can be paired with an individual or family facing similar challenges, based on the information provided. The nature of each connection is up to the participants—you can choose to have a one-time conversation or build an ongoing relationship based on your mutual preferences.
To ensure a respectful, supportive, and beneficial experience for all participants, we kindly ask that you review the Program Guidelines before signing up. These guidelines outline expectations such as maintaining confidentiality, offering support through shared experiences, and respecting individual differences.
Online Groups
For adult patients and the parents of patients under the age of 18, we maintain a private Facebook group. This group was created as a place where patients and parents can share experiences. This group will not show up in searches and you must be an approved member.
Facebook Friends and Family Support Group
For friends and families, we maintain a private Facebook group. This is a closed group which can be found through a search, and you must be an approved member. This group was created as a place where families and friends can share experiences.
To join either group, please send a request to support@lgdalliance.org.
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We are honoured to share this heartfelt blog written by Jordan, who has been fundraising in memory of his cousin’s little boy, Coby. Fundraisers like Jordan play a crucial role in helping us continue our work — supporting patients and families affected by complex lymphatic anomalies, educating the public and medical professionals, and funding essential research.
