Stories : Patients & Caregivers : Lymphangiomatosis & Gorham's Disease Alliance

Sharing our stories helps us connect and draw strength from one another.

You don't have to feel alone.

We invite you to share your own story to inspire, comfort, and support others.

Leeya

Living with GLA
Jessica

Living with GLA
Scot

Living with KLA
Gregory

Living with GLA
Amber and Michelle

Living with GLA
Alfie

Living with GLA
Written by Supporter
Emily

Living with GLA
Written by Supporter
Hayley Louise

Patient with GSD
Poem

In Memorial

In Memorial

Melanie Rose Chaite
"...was an inspiration to many others with complex lymphatic anomalies..."
February 12, 2020 - 26 years old
Joshua Avis
"That sweet, strong, brave, angel was our hero"
November 19, 2019 - 11 months old
Scott Inman
"...never give up hope, even when it LOOKS hopeless, there’s a tomorrow."
January 16, 2009 - 37 years old
Brittany Danielle Burford
“I’m not afraid of dying anymore. I don’t want to, but I’m not afraid.”
September 26, 2009 - 18 years old
Robin Brown
"She always found a way to brighten up a room and make us laugh."
February 7, 2007 - 26 years old
Marcus Veng Petersen
"...he was only here for a brief span, his footprint can be seen around the world."
September 7, 2004 - 7 years old

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Our community impact!

Social Media Followers

2,970
Registry Participants

464
Funds Raised for Research

$900,000

Image Slideshow

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