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Patients & Caregivers

Becca and Libby

In this powerful and informative video, Becca shares her family's journey of living with a rare medical condition known as KLA (Kaposiform Lymphangiomatosis). Becca and her daughter, Libby, reside in Southeast England, and their journey with KLA began in June 2021 when Libby was just 14 months old. Join Becca as she shares her family's inspiring journey and the importance of genetic testing in the journey of those affected by KLA. This session sheds light on the resilience and determination of families facing rare medical conditions and their relentless pursuit of effective treatments.