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Mental Health

Videos

Welcome to our mental health resources page, specially designed for individuals who are navigating the challenges of CLAs while prioritizing their mental well-being. LGDA is committed to fostering a community where you can access the resources and guidance you need to achieve both physical and emotional well-being on your journey.

Here are two recommended resources that provide tailored mental health care for individuals and families navigating complex health challenges:

Rareminds
Rareminds is a pioneering nonprofit organization based in the UK, offering specialized counselling and psychotherapy services specifically for the rare disease community. Established in 2014, Rareminds’ mission is to make affordable, accessible mental health care an integral part of rare disease treatment. Through online counselling and wellbeing services, they support individuals in navigating the psychological and emotional aspects of rare conditions. 

Rare Counselling - Dr. Albert Freedman
Dr. Albert Freedman, PhD, is a licensed psychologist with a specialized practice serving patients and families affected by rare diseases and complex medical conditions. With clients across 40 states in the USA, Dr. Freedman provides counselling services designed to meet the unique mental health needs of individuals and families dealing with rare diseases. 

Learn more:

Living with a rare condition like Complex Lymphatic Anomalies (CLA) often requires adapting to various life changes and facing different kinds of losses. The type and extent of these adjustments can vary greatly among individuals, but learning to recognize and accept them is crucial for emotional and practical well-being. 

November marks National Family Caregivers Month, a time to recognize the strength, compassion, and resilience of family caregivers across the country. We celebrate the role caregivers play in supporting loved ones with complex lymphatic anomalies.

Every year on October 10th, people around the world come together to observe World Mental Health Day. This day, established by the World Federation for Mental Health (WFMH), aims to raise awareness about mental health issues, mobilize efforts in support of mental health care, and reduce the stigma surrounding mental illness. For those living with complex lymphatic anomalies (CLAs), mental health can be an overlooked but essential part of the journey.

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