Clinical Trials
Current patient survey and study:
- PTX-022 in the Treatment of Microcystic Lymphatic Malformations: This study is to assess the change in microcystic lymphatic malformations IGA with QTORIN™ 3.9% Rapamycin Anhydrous Gel. This study has 15 locations around the US. Questions - See complete information.
- Vascular Anomalies Care Coordination Study: This study is focused on parents or guardians living in a rural community with a child, under 18, with a vascular anomaly. Study is open to those in the US. Questions - contact Anna Kerr, PhD, Ohio University; kerra1@ohio.edu or 614 793-5609 See complete information.
- Alpelisib in PIK3CA Associated Lymphatic Malformations: This study is to evaluate the safety and efficacy of a drug called alpelisib in patients diagnosed with lymphatic malformations, with confirmed PIK3CA variant. See complete information.
- Vascular Anomalies Family Planning Study: A researcher at Ohio University is recruiting female patients with vascular anomalies to participate in an interview about their experiences related to pregnancy, fertility, and family planning. See complete information.
- A Prospective Natural History Study of Lymphatic Anomalies: Find out more about the study and the eligibility criteria here.
- Oral Side Effects Associated With Lymphatic Disorders: Patients and their parents are invited to complete a short survey. See complete information. Questions - contact Aparna Bhat, DMD, MD abhat505@uw.edu
LGDA posts research programs conducting clinical trials into the causes and/or treatments of CLAs. This information is a resource only and LGDA receives no support or compensation for the listing of research programs/clinical trials. We recommend that you seek the guidance of your physician when making decisions regarding research or entering a clinical trial.
