Clinical Trials
Current patient surveys and studies::
- STARBORN-1 Study: This medical research study is at children's hospitals and clinics in the US and focused on the cyst in lymphatic malformations. Visit the study website, download informational flyer, or visit clinical trials website.
- PTX-022 in the Treatment of Microcystic Lymphatic Malformations: This study is to assess the change in microcystic lymphatic malformations IGA with QTORIN™ 3.9% Rapamycin Anhydrous Gel. This study has 15 locations around the US. Questions - See complete information.
- Interview Survey about Vascular Malformations: This research study is specifically looking for those with Lymphatic Malformations and PIK3CA-Related Overgrowth Spectrum. The survey is limited to the US. See complete information.
- Alpelisib in PIK3CA Associated Lymphatic Malformations: This study is to evaluate the safety and efficacy of a drug called alpelisib in patients diagnosed with lymphatic malformations, with confirmed PIK3CA variant. See complete information.
- Vascular Anomalies Family Planning Study: A researcher at Ohio University is recruiting female patients with vascular anomalies to participate in an interview about their experiences related to pregnancy, fertility, and family planning. See complete information.
- A Prospective Natural History Study of Lymphatic Anomalies: Find out more about the study and the eligibility criteria here.
LGDA posts research programs conducting clinical trials into the causes and/or treatments of CLAs. This information is a resource only and LGDA receives no support or compensation for the listing of research programs/clinical trials. We recommend that you seek the guidance of your physician when making decisions regarding research or entering a clinical trial.
