Learning Videos : Researchers & Clinicians : Lymphangiomatosis & Gorham's Disease Alliance

CLA Webinars 2024

Tale of Two (actually three) Lympathic Malformations

Jonathan Perkins, DO
Seattle Children's Hospital - April 2024
MEK Inhibition Reduces Vascular Tumor Growth and Coagulopathy in a Mouse Model with Hyperactive GNAQ Mutation

Elisa Boscolo, PhD
Cincinnati Children's Hospital - February 2024

CLA Webinars 2023

Building and Maintaining Embryonic Blood Vessels

Ondine Cleaver, UT Southwestern Medical Center
April 2023

CLA Webinars 2022

Angiopoietin-2 Focused Strategies

Stryder Meadows, PhD
Tulane University - February 2022
Modeling arteriovenous malformations: Endothelial cell k-RasV12

George Davis MD, PhD,
University of South Florida - March 2022
New Diagnostic Tools and Treatments for Central Lymphatic Flow Abnormalities

Yoav Dor, MD, PhD
Children's Hospital of Philadelphia - April 2022
Cellular and Molecular Mechanisms

Elisa Boscolo, PhD
Cincinnati Children's Hospital - May 2022
Bone Remodeling Alterations in GSD

Michela Rossi, PhD
Bambino Gesu Children's Hospital - June 2022
Shear Stress Regulates Lymphatic Vascular Patterning

Sathish Srinivasan, PhD
Oklahoma Medical Research Foundation - July 2022
Barriers to Expert Care for Patients

Dr. Bryan Sisk, MD, MSCI, Washington University in St. Louis
Dr. Anna Kerr, PhD, Ohio University
August 2022

International Conference on Complex Lymphatic Anomalies

Genetic Causes of Complex Lymphatic Anomalies

Genetics of CLAs

Miikka Vikkula, MD, PhD
de Duve Institute, Universite catholique de Louvain
September 2023
Minimally Invasive Diagnostics for Lymphatic Malformations

James Bennett, MD, PhD
Seattle Children's Hospital/University of Washington
September 2023
Matching Genetic Variant with Appropriate Medical Therapy

Alex Borst, MD
Penn Medicine/Children's Hospital of Philadelphia
September 2023
Genetic Causes of CLAs

Carrie Shawber, PhD
Columbia University Medical Center
October 2021
Genetic Causes of GSD

Miikka Vikkula, PhD
de Duve Institute, Université catholique de Louvain
October 2021
Genetic Causes of CCLA and KLA

Dong Li, PhD
Children’s Hospital of Philadelphia
October 2021

Clinical Advances

Lymphatic Effusions in Infancy

Ionela Iacobas, MD
Texas Children's Hospital/Baylor College of Medicine
September 2023
Spectrum of GSD Exploring a Single Center Pediatric Case Series

Sabrina Buonuomo, MD and Ippolita Rana, MD
Bambino Gesu Children's Hospital
September 2023
Communication, Health Care Delivery & Burdens of Disease in CLA

Bryan Sisk, MD
Washington University at St. Louis
September 2023
Analysis of a New Therapeutic Approach to Inhibit Osteolysis in GSD

Michela Rossi, PhD, Bambino Gesu Children's Hospital
September 2023
Molecular Mechanisms of EPHB4 Pathogenesis

Silvia Martin Almedina, PhD
St. George's University of London
September 2023

Treatments for CLAs

Experience in the Use of Alpelisib in Patients

Paloma Triana, MD
Children’s Hospital Universitario La Paz
September 2023
Clinical Management of Complex Lymphatic Anomalies

Kiersten Ricci, MD
Cincinnati Children's Hospital
September 2023
Sirolimus Update and New Agents on the Horizon

Adrienne Hammill, MD, PhD
Cincinnati Children’s Hospital Medical Center
October 2021
Update on PIK3CA Inhibitor (Alpelisib) in Lymphatic Anomalies

Guillaume Canaud, MD, PhD
Necker Hospital, University of Paris
October 2021
Treatment of CLAs with Bone Involvement

Juan Carlos Lopez Gutierrez, MD, PhD
La Paz Children’s Hospital
October 2021
Treatment of CCLA

Kristen Snyder, MD
Children’s Hospital of Philadelphia
October 2021
KLA Update

Whitney Eng, MD
Boston Children’s Hospital
October 2021
Patient Reported Outcomes in CLA

Taizo Nakano, MD, PhD
Children's Hospital of Colorado
October 2021

Preclinical Models to Study CCLA, GLA, GSD, and KLA

The Role of Hyperactive KRAS Signaling in CLAs

Michael Dellinger, PhD
UT Southwestern Medical Center
September 2023
Cellular Mechanisms Underlying PIK3CA-driven Lymphatic Anomalies

Hans Schoofs, PhD Student, Uppsala University
September 2023
Role of NRAS Q61R in the Pathogenesis of KLA

Tim Le Cras, PhD
Cincinnati Children's Hospital/University of Cincinnati
September 2023
Zebrafish Model of CCLA

Sarah Sheppard, MD, PhD
Children’s Hospital of Philadelphia
October 2021
Zebrafish Model of KLA

Shoshana Greenberger, PhD
Sheba Medical Center
October 2021
Xenograft Model of KLA

Tim LeCras, PhD
Cincinnati Children’s Hospital Medical Center
October 2021
Genetically-engineered Mouse Model of GLA/LM

Taija Makinen, PhD
Uppsala University
October 2021
Animal Model of Gorham Stout Disease

Michael Dellinger, PhD
UT Southwestern Medical Center
October 2021

Imaging Features of CLAs and Biomarkers for CLAs

Diagnostic Imaging of Tissue Biopsies for Spatial Deep-phenotyping of Lymphatic Anomalies

Rene Hagerling, PhD
Charite - Universitatsmedizin Berlin - September 2023
Interventions in CLAs: Current and Future Directions

Deb Rabinowitz, MD
Nemours Children's Hospital-Delaware
September 2023
MRL and Beyond

Christopher Smith, MD, PhD
Children’s Hospital of Philadelphia
October 2021
Immune Dysregulation in Lymphatic Anomalies

Ionela Iacobas, MD
Texas Children’s Hospital / Baylor College of Medicine
October 2021
Clinical Biomarkers and Assessment of Bone Disease and Response in CLA

Janet Crane, MD
The Johns Hopkins University School of Medicine
October 2021
Pulmonary Characteristics of Lymphatic Anomalies

Christopher Towe, MD
Cincinnati Children’s Hospital Medical Center
October 2021

New Technologies for CLA Research

HAM, A Novel Pleurodesis Agent Inspired by PAM for LAM

Frank McCormack, MD
University of Cincinnati
September 2023
Leveraging Tissue Engineered Lymphatic Malformation Models

Brandon Dixon, PhD
Georgia Institute of Technology
September 2023
Engineering Approaches for Understanding Cellular Dynamics

William Polacheck, PhD
University of North Carolina at Chapel Hill
September 2023
Nanoparticles to Target Pulmonary Lymphatics

Hasina Reed, MD, PhD
Weill Cornell
October 2021
3D Imaging of Patient and Animal Samples

Rene Haegerling, MD, PhD
Charité Universitätsmedizin Berlin
October 2021
Methods to Study Lymphatic Contractility and Permeability

Joshua Scallan, PhD
University of South Florida
October 2021
Microfluidics and Lymphatics

J. Brandon Dixon, PhD
Georgia Institute of Technology
October 2021

Patient, Science, and Clinician Connection

Our community impact!

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521
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