Successful Treatment of GLA with AI3K Inhibitor Alpelisib

In this episode Taylor, a young woman with generalized lymphatic anomaly (GLA), shares her diagnostic odyssey and how her journey was impacted by exciting research performed by Dr. Adrienne M. Hammill, MD, PhD, Associate Professor of Pediatrics, and her colleagues at Children’s Hospital of Cincinnati and University of Cincinnati College of Medicine. In the second half of the episode, Kimberley Steele, MD, PhD, Director of Patient-led Research for the LGDA, joins the discussion to explore the importance of addressing mental health and parents and doctors including older children and teens in decision-making.