Skip to main content

Meet Kevin and Jen

Meet Kevin and Jen, parents from Ontario, Canada, sharing their touching journey as caregivers to a child with a rare disease. They open up about the challenges their family has faced, from extended hospitalizations during COVID-19 to the strain on their relationships. Their son's rare disease, a complex lymphatic anomaly, brought immense stress and uncertainty. Kevin and Jen discuss the difficulties of balancing work, caregiving, and medical appointments. The video highlights the need for mental health support, both for the children and parents, and underscores the importance of understanding and community in the face of rare diseases. Their inspiring journey reflects the resilience of the human spirit. Watch, share, and support their power.