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Patients & Caregivers


Julie shares her personal journey of living with a rare lymphatic condition. Julie is a 41-year-old female residing in New York, United States, who has been diagnosed with a general lymphatic anomaly (GLA) in addition to a central conducting lymphatic anomaly (CCLA). Her diagnosis story is a remarkable one, as it highlights the challenges faced by many individuals with rare medical conditions. Throughout the video, Julie emphasizes the importance of gathering information and connecting with top medical professionals, as every case of this rare condition presents differently. Despite the uncertainty, she finds peace of mind in her current state of health and cherishes her role as a mother to three sons. Julie's optimism and gratitude shine through as she awaits the results of her genetic testing and looks to the future with hope.