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Patients & Caregivers


Join Leeya in this insightful and heartfelt session as she shares her personal journey with a rare medical condition and the valuable resources she has encountered along the way. Leeya's story began when she was diagnosed with a generalized lymphatic anomaly at the age of 15. Her journey highlights the importance of seeking answers, connecting with the medical community, and advocating for rare disease awareness. Leeya shares her hope of making a positive impact on others through her experience and offers to provide guidance and advice to those interested in exploring the resources she mentioned. Join Leeya on her journey of resilience, advocacy, and hope in the face of a rare medical condition.