Adolescence is a period of identity development, increasing independence, and evolving social relationships. For teens living with a lymphatic malformation (LM) or complex lymphatic anomaly (CLA), these years may include balancing medical care with school, friendships, body image, and growing autonomy.
This stage often marks a shift from parent-led care to shared responsibility. Encouraging independence while maintaining appropriate support can help teens build confidence and self-advocacy skills.
Identity & Social Development
Teens may experience:
- Increased awareness of body image and appearance
- Questions about identity and belonging
- Concerns about how peers perceive their condition
- A desire for privacy or selective disclosure
Open conversations at home and supportive peer environments can help teens feel understood and empowered.
Building Independence
Adolescence is an important time to gradually increase involvement in healthcare decisions.
Teens can begin to:
- Participate actively in medical appointments
- Describe their condition in their own words
- Understand medications and treatment plans
- Ask questions directly to providers
- Take increasing responsibility for managing care
Developing these skills early builds confidence and prepares them for adulthood.
Transition to Adult Care
Transitioning from pediatric to adult healthcare is a significant milestone. Preparation often begins during adolescence and continues into early adulthood.
This process includes:
- Learning to schedule appointments independently
- Understanding insurance coverage
- Transferring to adult specialists
- Managing medical records and documentation
Transition is not a single event — it is a gradual process that benefits from early planning and supportive guidance.
