Exciting News: New Adult Center for Complex Lymphatic Anomalies in the UK!
We are thrilled to share the news that Guy’s and St Thomas’ Hospital in London, UK, has recently inaugurated a facility to cater to adults grappling with complex lymphatic anomalies. The mosaic disorders clinic, led by Professor Pierre Vabres is an integral part of the Rare Disease Collaborative Network (RDCN) and is poised to transform the landscape of care for those facing these rare and intricate conditions.
Comprehensive Care for a Range of Cases
The clinic is committed to providing specialized diagnosis and care for adults with diagnosed or suspected mosaic disorders. This encompasses a broad spectrum, including congenital naevi affecting various cells of the skin and underlying tissues, vascular anomalies, overgrowth syndromes, and mosaic forms of germline disorders like mosaic neurofibromatosis type 1 and mosaic tuberous sclerosis.
Expertise and Compassion in Harmony
The mosaic disorders clinic boasts a team of dedicated healthcare professionals equipped with both expertise and compassion. These healthcare heroes are devoted to delivering personalized care, and understanding the unique needs of each individual affected by these rare conditions.
Spread the Word: A Call to Action
Raising awareness is paramount. Help spread the word about this crucial service. Guy’s and St Thomas’ Hospital stands ready to provide the necessary support and care to navigate the challenges posed by mosaic disorders like complex lymphatic anomalies. Link to Appointments and Referrals information.
Not all physicians are located in Vascular Anomalies Centers so only a partial list is shared on our website. Please contact support@lgdalliance.org for further contact information. If patients are being seen at a Center not listed, please inform us so it can be added, ensuring that everyone has access to the resources they need.
