Are you passionate about making a difference in the Complex Lymphatic Anomalies (CLA) community? The Lymphangiomatosis & Gorham's Disease Alliance (LGDA), LGDA Europe, and the Lymphatic Malformation Institute (LMI) are looking for dedicated individuals like you to join the Patient Community Advisory Council (PCAC). This is a unique opportunity to ensure that the voices of patients and their families are at the forefront of our efforts to support and advance the global CLA community.
Why Join the PCAC?
The PCAC plays a vital role in shaping the strategies and initiatives of LGDA, LGDA Europe, and LMI. As a member, you will have the chance to directly influence the direction of these organizations, ensuring that our programs and resources meet the real needs of those affected by CLA. Your insights and experiences can help guide our efforts in research, clinical care, education, and advocacy, making a tangible impact on the lives of patients and families worldwide.
How You’ll Make a Difference
By joining the PCAC, you will:
- Be a Voice for the Patient Community: Help identify unmet needs in support, education, and advocacy, ensuring that our efforts are truly patient-centered.
- Influence Research and Clinical Priorities: Ensure that patient perspectives are central to the research and clinical initiatives of LGDA, LGDA Europe, and LMI.
- Shape Educational and Outreach Programs: Review and help develop educational materials and programs that address the most pressing needs of the CLA community.
- Contribute to Strategic Decisions: Advise our executive leadership and Boards of Directors, helping to shape the future direction of our organizations.
Who We’re Looking For
The PCAC is open to individuals diagnosed with CLA or their family members who are committed to advancing the mission of our organizations. We seek members who:
- Are passionate about advocating for the CLA community.
- Can commit to actively participating in meetings and initiatives.
- Bring diverse perspectives and experiences that reflect the global CLA community.
- Are eager to collaborate with other patients, caregivers, and professionals to drive meaningful change.
What’s Involved
Members of the PCAC serve a two-year term, with the opportunity to renew for additional terms. Meetings are held quarterly, with a mix of in-person and virtual participation. As a Council member, you will not only attend these meetings but also engage in important work outside of them, contributing your expertise and ideas to various projects and initiatives.
Ready to Make an Impact?
Volunteering for the PCAC is more than just a commitment—it's a chance to be part of something bigger, to be a driving force behind the positive changes we’re making in the CLA community. Your participation can help ensure that every decision we make is informed by the real-world experiences and needs of patients and families.
If you’re ready to take on this rewarding role, we invite you to apply to join the PCAC. Together, we can amplify the patient voice and create a brighter future for everyone affected by Complex Lymphatic Anomalies.
Apply today and become a leader in our mission to improve lives and advance care for the global CLA community.
