We are thrilled to announce the formation of an expert committee dedicated to the creation of the Consensus of Care Guidelines for Complex Lymphatic Anomalies (CLAs). Comprising renowned specialists from around the world, our committee represents a diverse spectrum of medical, research, and advocacy fields, each bringing a unique global perspective to the table. This international collaboration underscores our commitment to standardizing treatment protocols and enhancing patient care on a global scale.
These guidelines are more than mere documents; they are a beacon of hope for countless individuals living with CLAs, offering them a promise of better, more consistent care. The combined expertise and dedication of our committee members are pivotal in our quest to transform the lives of those affected by these challenging conditions.
The committee includes:
Co-chairs:
- Alexandra Borst MD, NC Children's Hospital, Associate Professor of Pediatrics, UNC School of Medicine, United States
Bryan Sisk MD, St. Louis Children's Hospital, Assistant Professor of Pediatrics, Washington University in St. Louis, United States
- Denise Adams MD, Director of the Complex Vascular Anomalies Program, Children's Hospital of Philadelphia, Professor of Pediatrics, Perelman School of Medicine, University of Pennsylvania, United States
- Eulàlia Baselga Torres, MD, PhD, Head, Department of Dermatology, Sant Joan de Déu Barcelona Children's Hospital, Associate Lecturer in Dermatology, Universitat de Barcelona, Spain
- Jimmy Bennett, MD, PhD, Assistant Director, Molecular Diagnostics, Seattle Children's Hospital, Assistant Professor of Pediatrics, University of Washington School of Medicine, United States
- Laurence Boon MD, Center for Vascular Anomalies, Cliniques universitaires Saint-Luc, UCLouvain, Brussels
- Jefferson Bownell MD, Attending Physician, Children's Hospital of Philadelphia, Assistant Professor of Clinical Pediatrics, University of Pennsylvania Perelman School of Medicine, United States
- Jen Boyce, Patient Community, Canada
- Gulraiz Chaudry MD, Interventional Radiologist, Boston Children's Hospital, Associate Professor of Radiology, Harvard Medical School, United States
- Sally Cohen-Cutler MD, Attending Physician and Associate Clinical Director, Comprehensive Vascular Anomalies Program at Children's Hospital of Philadelphia, Assistant Professor of Clinical Pediatrics, Perelman School of Medicine, University of Pennsylvania, United States
- Janet Crane MD, Pediatric Endocrinology and Director, Pediatric Bone Health Program, John Hopkins Medicine, Associate Professor of Pediatrics, Johns Hopkins University School of Medicine, United States
- Yoav Dori, MD, PhD, Director, Jill and Mark Fishman Center for Lymphatic Disorders and Lymphatic Research, Children’s Hospital of Philadelphia, Associate Professor of Pediatrics, Perelman School of Medicine, University of Pennsylvania, United States
- Pär Gerwins, MD, PhD, Professor, Department of Medical Cell Biology; Research Group Femke Heindryck, Uppsala University, Sweden
- Dov Goldenberg MD, Director, Pediatric Plastic Surgery and Vascular Anomalies Clinic, Hospital das Clinicas da Faculdade de Medicina da Universidade de Sao Paulo, Associate Professor, Hospital das Clinicas da Faculdade de Medicina da Universidade de Sao Paulo, Brazil
- Hakon Hakonarson, MD, PhD, Center for Applied Genomics, Children's Hospital of Philadelphia, Professor of Pediatrics, Perelman School of Medicine, University of Pennsylvania, United States
- Adrienne Hammill, MD, PhD, Cincinnati Children's Hospital Medical Center, Professor of Pediatrics, University of Cincinnati, United States
- Kayleigh Harper, Patient Community, United Kingdom
- Matt Hawkins MD, Director, Pediatric Interventional Radiology and Medical Director, Vascular Anomalies Clinic, Children's Healthcare of Atlanta, Associate Professor of Interventional Radiology, Emory University School of Medicine, United States
- Deborah Hornacek MD, Program Director, Cardiovascular Medicine, Cleveland Clinic Foundation, United States
- Ionela Iacobas MD, Medical Director, Vascular Anomalies Center, Texas Children's Hospital, Associate Professor of Pediatrics, Baylor College of Medicine, United States
- Mary Keniry, Patient Community, Ireland
- Willimijn Klein, MD, PhD, Associate Professor of Pediatric Radiology, Radboudumc, Netherlands
- Karen Loechner, MD, PhD, Pediatric Endocrinologist, Connecticut Children’s, Associate Professor, University of Connecticut School of Medicine, United States
- Juan Carlos Lopez Gutierrez MD, Head, Congenital Vascular Defects Unit, La Paz Hospital (Madrid), Head of Paediatric Surgery, Quirónsalud Madrid University Hospital, Spain
- Sheena Pimpalwar MD, Medical Director of Interventional Radiology, UT Southwestern Medical Center, Associate Professor of Radiology, UT Southwestern Medical Center, United States
- Maanasa Polubothu, MD, PhD, Great Ormond Street Hospital for Children, Principal Investigator, University College London GOS Institute of Child Health, United Kingdom
- Janet Reid MD, Vice Chair of Education in the Department of Radiology, Children's Hospital of Philadelphia, Professor of Radiology, University of Pennsylvania, Perelman School of Medicine, United States
- Kiersten Ricci MD, Clinical Director, Hemangioma & Vascular Malformation Program, Cincinnati Children's Hospital Medical Center, Univesity of Cincinnati, United States
- Gresham Richter MD, Vice Chair and Chief of Pediatric Otolaryngology, Arkansas Children’s, Professor of Pediatric Otolaryngology, University of Arkansas for Medical Sciences, United States
- Richard Francis Riedel MD, Medical Oncologist, Duke Cancer Institute, DukeHealth, Professor of Medicine, Duke University, United States
- Rossana Sanchez Russo MD, Children's Healthcare of Atlanta, Assistant Professor, Emory University School of Medicine, United States
- Kristin Sanfillipo MD, Staff Physician, John Cochran Veterans Administration Medical Center, Associate Professor, Hematology Division, Washington University School of Medicine at St. Louis, United States
- Emmanuel Seront, MD, PhD, Medical Oncologist, Cliniques universitaires Saint-Luc, UCLouvain Brussels Woluwe, Belgium
- Sara Sheppard MD, PhD, Eunice Kennedy Shriver National Institute of Children Health and Human Development, United States
- Abhay Srinivasan MD, Pediatric Radiologist and Director of Vascular Access, Children's Hospital of Philadelphia, Associate Professor of Clinical Radiology, Perelman School of Medicine University of Pennsylvania, United States
- Dario Teplisky MD, Pediatric Radiologist, Buenos Aires Garrahan Pediatric Hospital and Chair of Interdisciplinary Center for Vascular Anomalies, Sanatorio Mater Dei of Buenos Aires, Argentina
- Laura Tosi MD, Director of the Bone Health Program and Orthopaedic Surgeon, Children’s National Hospital, Professor of Orthopaedic Surgery, George Washington University, United States
- Christopher Towe MD, Director, Rare Lung Diseases Program, Cincinnati Children's, Associate Professor of Pediatrics, University of Cincinnati, United States
- Kamonpun Ussavarungsi MD, Pulmonary Medicine, Cleveland Clinic, United States
- Miikka Vikkula MD, PhD, Professor of Human Genetics, Université catholique de Louvain, Belgium
- David Weber, MD, MSCE, Medical Director, Center for Bone Health, Children's Hospital of Philadelphia, Associate Professor of Pediatrics, Perelman School of Medicine, University of Pennsylvania, United States
- Melinda Wu MD, MCR, OHSU Doernbecher Children's Hospital, Assistant Professor of Pediatrics, Oregon Health & Science University, United States
As we embark on this pivotal journey to develop the Consensus of Care Guidelines, we rely on the collective support of our community more than ever. The road ahead is filled with promise but also requires substantial resources to ensure that these guidelines are as comprehensive and impactful as possible.
We invite you to join us in this critical mission by contributing to our fundraising efforts. Your donations will directly support the activities of our expert committee, enabling them to meet, deliberate, and eventually deliver guidelines that will set a new standard of care for CLA patients around the world. Every contribution, no matter the size, brings us closer to a future where every individual with a complex lymphatic anomaly receives the best possible care.
Donate Now to help us make a difference in the lives of those living with complex lymphatic anomalies.
