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Finding Connection and Support: The LGDA Peer-to-Peer Program

The LGDA Peer-to-Peer Program for Complex Lymphatic Anomalies

Receiving a rare disease diagnosis like Complex Lymphatic Anomalies (CLA) can feel overwhelming and isolating. Navigating medical appointments, emotions, and life changes is challenging—but connecting with someone who truly understands can make a difference. 

What is the Peer-to-Peer Program? 

The LGDA Peer-to-Peer Program connects CLA patients and parents for shared support, encouragement, and wisdom. 

Who Can Join? 

  • Patients (18+) diagnosed with a CLA. 
  • Parents of children with a CLA seeking support. 
  • Individuals and families who have lived with a CLA diagnosis for many years—we encourage you to join and support those newly diagnosed. 

How Does It Work? 

  1. Complete the Matching Form – Share your experience and preferences. 
  2. Get Paired – Match with someone facing similar challenges. 
  3. Connect on Your Terms – Whether it’s one conversation or an ongoing relationship, the choice is yours. 

Sign up today! The Form and Guidelines can be found here.  Questions? Contact support@lgdalliance.org 

Why Peer Support Matters 

Living with a rare disease can feel lonely, but you’re not alone. This program offers: 

  •  Emotional support from those who understand. 
  •  Guidance from shared experiences. 
  •  A sense of belonging in the CLA community. 

Taking Your Time – And That’s Okay 

Connecting with others is personal—some may be ready now, while others need time. A rare disease diagnosis can be life-changing not only for the patient but also for their entire family, bringing emotional, mental, and practical challenges. If you’re not ready to engage with a peer, consider; 

When You’re Ready, We’re Here 

Whether you need support or want to offer it, the LGDA Peer-to-Peer Program is here to foster meaningful connections. 

Sign up today!  Questions? Contact support@lgdalliance.org 

Together, we can create a compassionate and supportive CLA community. 

Our community impact!

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