Living with a lymphatic malformation (LM) or complex lymphatic anomaly (CLA) affects more than physical health. It can influence emotions, relationships, routines, and daily life.
Patients and families may experience uncertainty, stress, frustration, grief, or isolation — sometimes all at once. These feelings are common when navigating a rare condition.
Emotional well-being is an important part of overall health. Recognizing emotional strain and building supportive connections can strengthen resilience over time.
For Patients
Children, teens, and adults living with LM or CLA may face emotional challenges related to:
Visible differences
Pain or physical limitations
Medical procedures
School or workplace adjustments
Feeling misunderstood
Support, open communication, and access to trusted resources can help patients feel empowered and less alone.
Visit Patient Emotional Support
For Caregivers & Parents
Caregivers often balance medical coordination, advocacy, and daily responsibilities — sometimes while managing their own emotional strain.
Supporting your own mental health helps sustain your ability to care for your loved one.
Visit Caregiver & Parent Well-Being
