You don’t have to be in Philadelphia to make a difference.
The Million Dollar Bike Ride brings rare disease communities together each year to fund research—but you can take part from anywhere.
Turn Simple Ideas into Impact
Fundraising can start with something small:
- Host a BBQ or neighborhood gathering
- Plan a school or workplace fundraiser
- Organize a walk, run, or bike ride
- Launch an online campaign
These efforts raise both funds and awareness—helping more people understand and support the rare disease community.
Why It Matters
Every dollar raised supports research for complex lymphatic anomalies and helps fund the Alfie Milne Young Investigator Award, a $25,000 grant supporting early-career scientists.
Your fundraiser can help spark the next breakthrough.
Get Started
We’ve made it easy with a fundraising guidebook filled with ideas, tools, and tips.
Download the guidebook and start your fundraiser
Start where you are. Change what’s possible.

