Making Rare Visible — Together
Lymphatic Malformation Awareness Month is in May and brings our community together with a shared purpose: to increase understanding, strengthen support, and drive progress for people living with isolated lymphatic malformations (LMs) and complex lymphatic anomalies (CLAs).
These conditions may be rare, but the challenges they bring are real—and too often, misunderstood. Awareness Month is an opportunity to change that.
Our Goals for Awareness Month
Awareness is more than recognition—it’s a catalyst for progress. This month, we’re focused on:
Increasing Understanding
Many people have never heard of lymphatic malformations or complex lymphatic anomalies. By sharing clear, accurate information, we can help more individuals recognize symptoms, seek care, and better understand these conditions.
Strengthening Community
For patients and families, connection matters. Awareness Month helps individuals feel seen, heard, and supported—while building a stronger, more connected community.
Advancing Research and Care
Greater awareness leads to greater momentum. It helps drive interest in research, improve access to specialized care, and support the development of better treatment options.
Why We’re Talking About Both Isolated LMs and CLAs
This year, our Awareness Month reflects a broader and more inclusive approach—recognizing the full spectrum of lymphatic conditions.
- Isolated lymphatic malformations (LMs) typically affect one area of the body
- Complex lymphatic anomalies (CLAs) may involve multiple areas or systems
While these experiences can be different, they are connected through the lymphatic system—and through shared challenges in diagnosis, care, and understanding.
By raising awareness of both, we:
- Provide clearer, more inclusive education
- Support more individuals and families
- Reflect how the field is evolving
- Strengthen our collective voice
No matter where someone falls on the spectrum, they deserve access to information, care, and community.
How You Can Get Involved
You don’t need to be an expert to make a difference. Awareness grows through simple, meaningful actions.
Learn
Take time to understand lymphatic malformations and complex lymphatic anomalies. Knowledge is the first step toward awareness.
Share
Use your voice to help make rare visible. Share a post, a fact, or a personal story. Every share helps expand understanding.
Use the hashtag: #LMawarenessMonth
Support
Support efforts that advance research, education, and patient care. Every contribution helps move progress forward.
Connect
Join the community. Listen, share, and support others navigating similar experiences. Awareness is built through connection.
Awareness Leads to Progress
Progress doesn’t happen by chance—it happens when people come together to learn, share, and act.
Lymphatic Malformation Awareness Month is more than a campaign. It’s a collective effort to:
- Make rare visible
- Improve understanding
- Strengthen community
- Drive meaningful change
Join Us
Whether you’re a patient, caregiver, clinician, researcher, or supporter—your voice matters.
Together, we can build a future where everyone affected by isolated lymphatic malformations and complex lymphatic anomalies has access to the care, answers, and support they need.
Learn. Share. Support.
And help make rare visible.
