Lymphatic Malformation Awareness Month is May and a time to come together to raise awareness, share experiences, and support progress for individuals and families affected by isolated lymphatic malformations (LMs) and complex lymphatic anomalies (CLAs).
These conditions may be rare—but the need for understanding, care, and research is not.
What are lymphatic malformations?
Lymphatic malformations are rare conditions where the lymphatic system forms differently than expected.
They can affect different parts of the body and may vary widely from person to person. Some individuals have localized (isolated) lymphatic malformations, while others may experience more complex conditions involving multiple systems.
No two experiences look the same—but no one should have to navigate it alone.
Why Awareness Matters
Because lymphatic malformations are rare, many individuals and families face:
- Delays in diagnosis
- Limited access to specialized care
- A lack of widely available information
- Few opportunities to connect with others who understand
Awareness helps change that.
When more people understand these conditions, it leads to:
- Earlier recognition and diagnosis
- Better access to care
- Stronger support systems
- Increased momentum for research
How You Can Get Involved
Awareness starts with simple actions—and grows with each voice added.
Learn
Take time to understand lymphatic malformations and how they impact individuals and families.
Share
Use your voice on social media to help make rare visible. Every post helps spread awareness.
Support
Support efforts that advance research, education, and patient care.
Connect
Join the community. Share your story. Help others feel seen and supported.
Join the Conversation
Be part of Awareness Month by sharing your voice and helping raise visibility.
Use the hashtag:
#LMawarenessMonth
You can also use:
#LymphaticMalformations #RareDiseaseAwareness #MakeRareVisible #ComplexLymphaticAnomalies
Awareness Creates Change
Awareness is more than information—it’s connection, understanding, and progress.
When we come together, we:
- Help individuals feel less alone
- Build stronger communities
- Support the research that leads to better care
Together, we can create a future where everyone affected by lymphatic malformations has access to the care, answers, and support they need.
Take the Next Step
Learn more: Explore isolated lymphatic malformations and complex lymphatic anomalies
Get involved: Join the movement
Support progress: Advance research. Improve Care.
