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Patients & Caregivers

Mental Health Seminar Series

Join our insightful webinar series focused on empowering patients and their families with valuable knowledge and self-help techniques to address mental health issues and concerns. Participants will gain a deeper understanding of the diverse nature of mental health concerns, realizing that families, patients, and caregivers have unique experiences. By recognizing these differences, attendees will be better equipped to navigate the challenges and complexities of mental health.

Together, we can create a supportive and understanding community that fosters growth and healing. Register now to secure your spot!

The webinar series is made possible through a grant from Global Genes.

Strengthening Relationships and Empowering Children: Navigating the Unique Challenges Faced by Rare Disease Families

Thursday, October 5 at 12:00 - 1:00 pm ET
Speaker: Dr. Albert Freedman

Living with a rare disease can be an arduous journey, not only for the affected individuals but also for their families. There is an immense emotional toll that rare diseases can have on families. It starts on finding and receiving a rare disease diagnosis which can be overwhelming. However, the journey doesn't end with a diagnosis; it continues with treatment, each step posing new challenges for families.

In this webinar, we will explore the unique mental health needs of families, and how to foster a compassionate and understanding family environment to find strength, hope, and resilience.

Who should attend:

  • Patients
  • Family members of a rare disease patient
  • Healthcare professionals seeking insights into the unique challenges faced by adult patients

Register for Dr. Freeman's webinar

Meet the Speaker

  • Dr. Albert Freedman
    Dr. Albert Freedman

    Dr. Al Freedman, a licensed psychologist, has provided child, adolescent, adult and family psychotherapy, as well as consultation to schools, health care organizations, rare disease advocacy organizations, and biopharmaceutical companies for over 20 years. He specializes in working with children, adolescents, and families, and has a special interest in families affected by disability and complex medical conditions.

    Learn more about Dr. Freedman: